tag:blogger.com,1999:blog-2621967507200057484.post6796184298037690477..comments2023-10-30T08:39:03.673-04:00Comments on Profoundly Seth: We're home! Sort of.Elhttp://www.blogger.com/profile/16908448846583081808noreply@blogger.comBlogger14125tag:blogger.com,1999:blog-2621967507200057484.post-32097529353639035702009-05-31T20:42:35.545-04:002009-05-31T20:42:35.545-04:00Glad to hear you are "home" and Seth is ...Glad to hear you are "home" and Seth is doing better. I'll keep praying for him. I'm glad you have some answers, but I also hope his docs can treat this somehow so it's not an ongoing issue for him!Susanhttps://www.blogger.com/profile/09650082888080513940noreply@blogger.comtag:blogger.com,1999:blog-2621967507200057484.post-49926525510102118122009-05-31T19:15:02.317-04:002009-05-31T19:15:02.317-04:00Never a dull moment with your adorable little guy!...Never a dull moment with your adorable little guy! ;) Praying all goes smoothly and uneventfully the next few days until you can get back to FL! <br /><br />Blessings sweet friend!<br /><br />ShandaShandahttps://www.blogger.com/profile/16800875348050052144noreply@blogger.comtag:blogger.com,1999:blog-2621967507200057484.post-75705215794016941732009-05-31T18:54:47.979-04:002009-05-31T18:54:47.979-04:00Wow. What an ordeal to go through. I feel for yo...Wow. What an ordeal to go through. I feel for you...nothing is as scary as wanting to know what's going on with your baby. Prayers that you get answers soon and for Seth's health.Emilyhttps://www.blogger.com/profile/04065195610270532889noreply@blogger.comtag:blogger.com,1999:blog-2621967507200057484.post-43332284689576316422009-05-31T14:16:45.592-04:002009-05-31T14:16:45.592-04:00Drive safely and as always I will keep praying for...Drive safely and as always I will keep praying for y'all.Mrs. Granberryhttps://www.blogger.com/profile/00404324533263935972noreply@blogger.comtag:blogger.com,1999:blog-2621967507200057484.post-46921142565688163332009-05-31T13:20:25.603-04:002009-05-31T13:20:25.603-04:00El,
You are speaking my language. We've been thro...El,<br />You are speaking my language. We've been through this 5 times.<br />We call them "respiratory distress" events. Eli's first one was at 11 months old. They are so scary. We didn't quite know what was happening that first time and we drove him to the hospital....bad idea! They took us back before we even told him our name! He was almost into cardiac arrest. After that we called the ambulance immediately upon seeing the retractions in his chest....and usually a "bark" like cough.<br />We've been told croup. Aspiration (our son is tube fed) from spitting up. Tracheamalacia. Etc.<br />After three years and five events, they still don't know why it happens.....but we've NEVER been told it's because of intubation. Eli was intubated for 3 weeks!<br />I mean we know he has a floppy airway because he has severe Cerebral Palsy. He cannot eat by mouth because he has a weak swallow. We know he doesn't manage his secretions well.<br />But we've never been told its just scarring.<br />Interesting to know! I'm glad I read your blog!<br /><br />Finally, I just want to say that Epi takes Eli out of it everytime!<br />When we've taken ambulance rides I insist on Epi while transporting....it's usually a fight....because it's not protocol. But I insist, they do it and he starts breathing again.<br /><br />There is always a crash about an hour or two later. Another recemic epi treatment is needed...and we stay the night in the ICU.<br /><br />We now carry a Junior Epi Pen with us. And keep one in the house.<br />We also got a note from our pediatrician instructing the ambulance personnel to give Epi.<br />I keep Emergency instructions and the doctor note taped to the closet door by our front door. All caregivers know what to do in case of an emergency.<br /><br />Feel free to contact me if you want to talk more.<br /><br />I'm glad Seth is OK! Eli always bounces right back, and we're home the next day going "what the heck just happened?"!!<br /><br />God bless you all.<br />AmyAnonymoushttps://www.blogger.com/profile/15244245535700748135noreply@blogger.comtag:blogger.com,1999:blog-2621967507200057484.post-53788510648082490532009-05-31T11:39:42.901-04:002009-05-31T11:39:42.901-04:00I am glad that he is doing better. I will keep pr...I am glad that he is doing better. I will keep praying for you all. That is so scary, momma!Sonyahttps://www.blogger.com/profile/14612376271533554603noreply@blogger.comtag:blogger.com,1999:blog-2621967507200057484.post-46464093129909164532009-05-31T09:42:22.797-04:002009-05-31T09:42:22.797-04:00I had a doctor send me home(an 1-2 hour drive) aga...I had a doctor send me home(an 1-2 hour drive) against mine and my mom's better judgement. He said there was no reason to keep me when there obviously was, and I threw up ALL the way home.<br /><br />It was absolutely awful because I was told I was going to be hospitalized. My doctor was FUMING. Sometimes I don't understand how people even get into medical school. I'm glad Seth is more comfortable now-scar tissue can be very painful.Madison Sandershttps://www.blogger.com/profile/18350350402291138649noreply@blogger.comtag:blogger.com,1999:blog-2621967507200057484.post-63626563822626178762009-05-31T08:43:01.673-04:002009-05-31T08:43:01.673-04:00Thank you for taking the time to update us - glad ...Thank you for taking the time to update us - glad to hear everything is ok.~ Lisa @ AbidingThere~https://www.blogger.com/profile/07514265213573291402noreply@blogger.comtag:blogger.com,1999:blog-2621967507200057484.post-37600582519864892922009-05-31T07:26:08.474-04:002009-05-31T07:26:08.474-04:00Glad to hear he is doing better. Continuing to pr...Glad to hear he is doing better. Continuing to pray for him. I hope the rest of your home away from home time is uneventful!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2621967507200057484.post-81076604702791112452009-05-31T03:04:08.089-04:002009-05-31T03:04:08.089-04:00Praying for your family.Praying for your family.Davedahttps://www.blogger.com/profile/14182993023405516646noreply@blogger.comtag:blogger.com,1999:blog-2621967507200057484.post-61281346720461625332009-05-31T02:36:13.800-04:002009-05-31T02:36:13.800-04:00That picture of Seth on that big old stretcher jus...That picture of Seth on that big old stretcher just killed me. I'm so glad he's doing better. I was praying for you through the night and today. Don't you wonder sometimes why it has to be the same child with all the problems? Seth is so special, but it's okay if he's special without having to prove it over and over again! LOL. Thanks for letting me share in praying for him.Cathyhttps://www.blogger.com/profile/18296959093929880406noreply@blogger.comtag:blogger.com,1999:blog-2621967507200057484.post-82981993630247907922009-05-31T02:26:21.856-04:002009-05-31T02:26:21.856-04:00I was so worried for you and Seth. But thank God h...I was so worried for you and Seth. But thank God he's doing much better. Definitely get that checked. Was it instinct to come check on him or was that feeding time? <br /><br />We prayed and prayed for you all, we don't know you personally but we were worried so much as if he were our own. <br /><br />Please keep us updated and drive back home through cities with great childrens care! Just to be safe! <br /><br />Lots of hugs and kisses for our little fighter :)<br /><br />AnalizaAnalizahttp://thebernatfamily.typepad.comnoreply@blogger.comtag:blogger.com,1999:blog-2621967507200057484.post-19128090787835984712009-05-31T02:01:22.319-04:002009-05-31T02:01:22.319-04:00Whew! I'll keep praying for you and Mr. Seth!Whew! I'll keep praying for you and Mr. Seth!Mandy Hornbucklehttps://www.blogger.com/profile/13147561043562435875noreply@blogger.comtag:blogger.com,1999:blog-2621967507200057484.post-81935749537007628972009-05-31T01:09:26.899-04:002009-05-31T01:09:26.899-04:00I'm glad you guys are back at your aunt's house. ...I'm glad you guys are back at your aunt's house. How scary all of this must have been! We will keep praying for Seth and I hope your vacation gets really boring!<br />JenJennifer W.https://www.blogger.com/profile/08192796018178306392noreply@blogger.com