DISCLAIMER: This has been a day. I am annoyed, and not sugar coating anything. I am being super transparent and ugly today.
So, we woke up later than usual because John and I had been up late stresssing about money and Seth and life. John rushed around to get Jace ready for school (today was a homeschool day for Ava), and I fed Seth and called his doctor to see if we could get in for an appointment...he has been acting funny. We couldn't get in until the afternoon, so after John took Jace to school I settled in to work on a photo book for a friend while Ava worked on her reading.
John called about 9 am, and I thought that was a little strange, as he should have been at work. I have not been fun to be around lately...Drew's death, Seth's issues, and random things have not made me very great to be around lately. So I knew it couldn't be good.
It wasn't. He'd been in an accident. Being the selfish person I am, my first comment after making sure Jace had not been in the car was "Oh no, our insurance will go up!" Yeah, I didn't even ask if he was ok. I'm an idiot.
So the police came out, checked everyone out, John signed the waiver for the ambulance, and was headed home...until they realized he had not updated his address on his license to reflect our current address. Ticket. Great.
After he got home, we were taking stock of the damage to the Jeep and I checked the bank balance to see whether we could fix it right away. Apparently I missed something in the book keeping, because both of our accounts were overdrawn. Wonderful.
Continue working on this photo book which was supposed to have been a Christmas present. Seth is whiny. Ava is not in the mood to homeschool. John keeps falling asleep so I am secretly afraid he has a concussion, even though he didn't hit his head. I finish the book, hit save, and...lose the whole thing. I consider banging my head against the wall.
I get all the pictures back in place and save the book. Do the sizing and captions and save and....lose it all again.
I have to give up so we can go get Jace. John wants to drive by where he got in the accident for some reason, maybe that he's insane. I remember that Ava hasn't eaten, so we stop at Arby's, where...the speaker is broken and we have to give our order to a guy standing outside. It's weird.
Finally make it to pick up Jace, who still has a black eye from falling off a stool the other day. Part of me is afraid the school is going to call the authorities because he looks like he's been abused. I have forgotten the enrollment for next year is due. Oops.
We run to the DMV to fix John's license. Every time I go, I'm in and out in less than five minutes. For some reason, John waits half and hour and he's not even close to getting done. We have to leave to get to Seth's appointment.
We get to the appointment, I take Seth in and he gets weighed...he has not gained any weight in over a week. This is a problem. He is not active...he's only rolled over one time, and I hardly think he burned several ounces in one roll. I explain what's been going on...the puking up through the nose, the not sleeping, the crying while eating, and his doctor looks at me sadly. She really, really doesn't want to, but she's done as much for his reflux as she can. She has to refer us to a specialist. She actually said "Please don't kill me."
ANOTHER FREAKING SPECIALIST? You've got to be joking. Seriously. But ok...yeah...she calls the doctor herself and gets him in Friday morning. That alarms me a bit, as she is obviously worried. While we're there, we discuss whether we should do an MRI for Seth now to look for a disorder Jace has because after he gets his CIs, MRIs will not be easy to do. She also says to count on him needing tubes.
I cry.
Yes, in front of the pediatrician (Who I love) I fall apart crying. Not because he's deaf, not because he's sick, but because after six months of nothing but doctors, I realize I am missing out on time to just enjoy my baby. And it sucks.
I pick up some forms the school system needs for his therapy, and on the form, it says this:
Problems that may impact the educational experience:
Developmental Delay, Profound Hearing Loss, Auditory Neuropathy, Reflux, possible Hear Condition- prolonged QT.
He's not even six months old! How can he have this many things working against him? I cry some more (Yes, I do realize there are many babies who are worse off. Please don't flame me).
We leave, I am a mess. We go back to the DMV to try to get John's license fixed again. They take pity on him since he has the kids and put him at the front of the line. The put the wrong birthdate on his license. Then the next license prints with a bubble, which is unacceptable. Then they put the old address again. Then they get another bubble. Finally, they print a good one.
In the meantime, the kids have broken one of those vision machines.
We come home, the house is trashed, and when I feed Seth, he still screams. I want to go to bed and end this day, but we have youth group. So we're going there. Let's hope something good happens, shall we?
Wednesday, January 7, 2026
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10 comments:
Ellyn,
Hang in there. I'm not going to try to make you feel better by saying, "Tomorrow will be a better day." We all know that tomorrow doesn't always bring the answers we need/want. Just keep God first and know that He is completely in control and is not surprised by the events that have happened today. I'll continue praying for your family.
Hang in there! Know I am praying for you and your family. Seth is a trooper! But I can only imagine how hard it is to go to all these appointments plus the needs of 3 children! Ahh! You are a great mom. I admire you, even though you have hard days and human emotions you keep on going for your family!
Hang in there Ellyn...tomorrow will be a new day with new challenges...hey I am not sugar coating either tonight! You are a strong woman who God allows to face onstacles she can handle...hang in there!!!
~Elyse~
Oh goodness. Here's a huge hug from Texas okay? Hang on...here it comes... {{SQUEEEEEEZE!}}
Did ya feel it? From one mama to another! Tomorrow HAS to be better, right?
I'm sorry you had such a bad day. =0(
E
El~
I am praying that God will sustain and redeem as only He can. He does have "plans to prosper you and not to harm you, plans to give you a hope and a future."
I am praising God that you are able to be real with your emotions and feelings.
That your husband was not harmed in the accident.
That Seth is alive and that God has an amazing purpose for His life.
That all of these struggles that you are going through are making you stronger.
That He has given you the ability to be an amazing mom who genuinely loves her children and will do what it takes to do all she can for them.
You don't have to be perfect girl. Cast your cares and needs upon Him. Do all that you have the strength to do and rest in the fact that He is working through these circumstances to make you even more beautiful and captivating to and through Him.
I have asked the "why me's?" I have told God that I believed He was giving me more than I could handle. I have questioned whether or not God was really good or loved me - other people seemed so blessed; their lives so uncomplicated and easy...every time He has led me to my knees to surrender it all to Him and every time I have been able to look back in hindsight to see His hand at work in positive ways for me - not always paths I would have chosen to walk or to have grown in; but I can see glimpses of His plan. I am praying that God will give you those glimpses - that He would allow you to see His hands at work right now in some way. That you would feel His embrace tonight...know that you are loved and being prayed for~
Shanda
Hey Ellyn- according to specialists and modern medicine, it may seems the odds are stacked against Seth. However, Seth has a very big God who is for him and has a plan for him and who promises to do the best for him.... no developmental delay, Neuropathy, reflux or anything else any specialist wants to throw at you can out weigh HIM! Love ya and hope it gets better.
((Hugs)) Praying that your time with the youth is one of enjoyment and refreshing with lots of laughter that involves snorting out loud!
Oh my.... I hope it got better since I'm reading on Friday. Praying that your appointment goes well today. Peace and ((((hugs)))) to you!
Wow...I cried for you just reading your post! Man El...I'm SO sorry for your bad day and everything going on. It always seems that a whole bunch of yucky stuff happens at once too.
I'm praying for you guys. Let us know how Seth's appointment goes.
Ellyn,
I am so sorry for the bad day. When it rains, it pours. I pray for brighter days ahead. I hope that Seth's next specialist's appt goes okay. Take care.
Amanda
Forever missing Gavin
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